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Monday, March 1, 2010

Hello March

Well  March is here, the Olympics are over, and the good guys won the gold medal game yesterday!
And Dave is now resigned to watching Oprah, Ellen, and Dr Oz! Just kidding. He insists that he watches nothing but sports highlights and olympic replays.

This morning we went to the LRCP for a consult with the Radiation Oncologist. Man that was frustrating. He said the only option (as a next step) is radiation, which would happen 5 days a week for 6 to 7 weeks and has a slew of it’s own side effects and risks with no guarantee that it will improve anything either. And the side effects would last another 4-6 weeks. (So 3 months of misery.) The side effects range from added pain and discomfort of the esophagus for sure, to potential for low blood counts and infections, absesses which he mentioned might feel like you're having a heart attack and should go to emerg. After chemo failed, we're obviously a little shy of radiation and I gotta say that he had no strong selling points. Also, he made it very clear that Dave can't have any anti-oxidants while doing radiation for 7 weeks as it negates the effects of radiation. It bothers us that in addition to damaging the immune system during treatment, you can't work on boosting it during this time.

I tried to discuss 2 other options (laser therapy & photodynamic therapy) to temporarily relieve the blockage and make Dave more comfortable, but he said they weren’t options because of the size of the tumor. We asked for a referral back to the thoracic surgeon Dave saw originally as I would prefer to get his opinion directly, and he said he would call them, but gave us the impression that they might not even be willing to spend the time to consult because basically radiation is just the next step and that’s the way it is. Take it or leave it.
I feel like kicking him in the shins...

He said he would go ahead and make plans for radiation while we think it over because it takes weeks to get things started anyway. (We obviously have the option to not go through with it.) The other thing that is frustrating is that he mentioned that they would prefer to have a PET scan done before radiation as it shows the cancer cells (including dormant cells) more clearly, but often OHIP won’t pay to have this done for poor prognosis cases. All he can do is put in a request and see what happens. Which, if I understand correctly, means that their radiation treatment won't be as good as it could/should be. It certainly wasn't a very good sell job.

So now we wait for phone calls. I actually called the surgeons office last Monday to try to get an appointment happening on my own, but to no avail. I will start pestering again tomorrow. Squeaky wheel...

We were discouraged earlier in the day but realized that we shouldn't be. The more frustrated we become with traditional treatment, the more alternative treatment makes sense here. Don't get me wrong, there's certainly a place for traditional medicine and after 2 recent sports injuries requiring surgeries in the last two years, I would actually be crippled right now without traditional medicine. There are areas where it excels and there are other areas (like oncology) where it feels like they're stabbing in the dark and hoping for the best. Fortunately we can rest our faith in Jesus Christ and know that he has a perfect plan. 

Yesterday Dave & I went to church, a friend from Toronto came by to visit afterwards, and then Dave went out to watch the Olympic Gold medal hockey game at a friends with a few guys from his baseball team . It was a great game, but Dave says that he still doesn't like Sydney Crosby! Hahaha! Dave also wants to thank Taylor for coming by to shovel our driveway on Saturday after all that snow we had. (Cale shovelled as well, but his leg is still sore from the car accident last Monday evening, and actually looks horrible now that gravity has hit the bruise.)

Thank you everyone for your emails, phone calls, prayer and support.
Have a great weekend!

Val

8 comments:

Anonymous said...

You guys were on my heart many, many times today. I knew you had this appt today and was praying for clarity, peace, understanding...and of course..the miracle of..."Mr. Richards, we have no explanation...but the cancer is gone!" We keep praying for you guys. Sending you love and hugs for a fabulous week.

Lisa (and all the other 'little' prayer warriors here at our house!!

A.J. said...

Dave, my secret shame is when recovering from my accident I ended up a daily viewer of Regis and Kelly. :(

Praying for a calm in the storm....

Unknown said...

Hey guys! Great to see you the other day. Hope you're having fun with Frankie today Dave.
Hey, if you guys are interested in growing your own wheatgrass and sprouts check out this link:
http://www.greenhealthcanada.com/EasyGreen_Sprouter.html
This is where I got my juicer from. If you decide to call them, ask for Troy. He's an awesome guy and will send you starter packets and has good deals. They're located in Creemore. Anyways, talk soon. You're in my thoughts and prayers. Cheers. Colin.

Anonymous said...

Thank you for the updates, as you are in our thoughts and prayers daily. We continue to be amazed by you, and to lift you up before our Father. You are loved.
Bob and Carolyn

Anonymous said...

It has been a while since we have seen your blog as we have been without internet. Thank you so much for sharing your many challenges and thots with us. Cale, I hope that leg is 100% soon-ouch! Dave and Val you must be on information overload -"stop this carousel & let us think for a moment". I am truly amazed at the courageous & intelligent journey you are travelling. Val you are being a wonderful advocate for Dave. I just wanted you to be assured that we are praying for you day&night(I'm not a good sleeper) along with 100s of others.We pray that you will experience God's love & peace in a significant way & that He would give you wisdom in the days ahead. Cale, although many of our comments are directed to your mom & dad please know that you are special and that we pray for you on this journey too.
Take comfort today in Psalm 139.
Much love -Barb & Chuck

Anonymous said...

Dave and Val. We are away for the winter and just heard from Rick Singleton of your illness. It is so hard to believe that cancer has hit you so hard and so fast. I remember the last time I saw you at the Ofssa Volleyball. It was so good to reconnect.
Val I can't thank you enough for your blog, your courage and persistance.
Dave stay strong (I know you will). Trust the Dr's. I know it can be frustrating but I strongly believe that they will do all they can. It worked for me once and hoping it will work again.
Our prays and thoughts are with you and your family.
Tammy and Jim
ps Val your story about your family is very similar to mine. Thanks for sharing that too.

Anonymous said...

Thinking of you Dave and Val! FYI -I am not a fan of Sydney Crosby either but was very proud of the 'team' in their win! Lifting you up each day and praying that you will have direction and peace!
Alisha

Michelle and boys said...

Hey guys, I just figured out how to leave a comment here, lol The internet isn't my strong point!

I just wanted to let you guys know I think about you all the time.

P.U.S.H.

xoxo